Extra Exton

Exton graced the world with his early arrival on February 28, 2017. His parents were overflowing with love for this tiny perfect person they had created. A few hours before they were to be discharged home, a nurse noticed a possible marker for a genetic abnormality and then a cardiac echo was done. Exton's mom, …

Siblings of Medically Complex Kids

November is still caregiver month, and sometimes we forget how much care the siblings of medically complex kids provide. Having a child with special needs changes the family dynamic. Now one individual needs the attention of someone constantly, instead of attention being spread around evenly. This can be a confusing and emotional time for the …

What is Bronchopulmonary Dysplasia?

Bronchopulmonary dysplasia, more commonly referred to as BPD, is one of the most common chronic lung diseases in children. BPD typically affects premature infants with low birth weights. This patient group will have under developed lungs. Some babies who encounter respiratory distress shortly after birth may also be at risk. White males seem to be …

Air Quality at Home

Once you finally break free of the hospital and get to go home as a family, the last thing you want is to go back to the hospital any sooner than necessary. These are a few of the best tips compiled from multiple sources to help you have the best air quality possible flowing through …

Raising Warriors

Being a parent is hard. You are completely responsible for another human life. You're not only responsible for keeping them alive, but also for providing for all of their needs and giving them the best life possible. That's a stressful task for a normal healthy child. When you are the parent of a medically complex …

Parade of Costumes

One of the great things about Halloween is the opportunity to be able to dress up as anything you want to be. For one night you can be your favorite hero, or your own nightmare. It's also a chance for our families to show off their creative talents, and let me tell you, these guys …