Extra Exton

Exton graced the world with his early arrival on February 28, 2017. His parents were overflowing with love for this tiny perfect person they had created. A few hours before they were to be discharged home, a nurse noticed a possible marker for a genetic abnormality and then a cardiac echo was done. Exton's mom, …

Parade of Costumes

One of the great things about Halloween is the opportunity to be able to dress up as anything you want to be. For one night you can be your favorite hero, or your own nightmare. It's also a chance for our families to show off their creative talents, and let me tell you, these guys …

Sick Season Prep

Being the parent of a medically complex child, you tend to quickly turn into a germaphobe. You probably own double digits of hand sanitizers, lysol sprays, and have mastered the art of giving the evil eye to anyone who doesn't cover their cough or sneeze. As you should! Once sick season hits, everyday germ watch …

You Might Be A Trach Parent If…

I stumbled across this perfectly written article by a trach mom and I had to share. I'm sure A LOT of you can relate to this. Trachin' ain't easy! You might be a trach mom if... You have ever looked into a trach tube to check for a plug and got secretions shot at you. …

Artificial Noses Are Awesome

Someone just read that title and said to their self, “What? I’ll keep my regular nose”. Artificial noses are for people who also have an artificial airway (trach tube). Our bodies normal way of giving the air we breathe heat and humidity, is through our nose and our mouth. This is also how our bodies …

Preparing For Your Child To Have A Tracheostomy

What Is a Tracheostomy?  A tracheostomy is a surgery where a doctor places a tube into your child’s trachea to assist with breathing. This creates an opening that is called a tracheostomy or a stoma. You often will hear this opening called a “trach.” Some common reasons for placing a trach include …• To bypass …